Final up to date on April 2, 2023.
It’s been awhile, and although I do share tidbits extra continuously on social media and by way of my e-newsletter, I wished to do a full write up of what has been happening. I haven’t printed a weblog put up since April, so this can be a lengthy overdue replace. It shares some thrilling skilled information, but in addition the private because it pertains to my well being.
This group has been an enormous a part of what has stored me afloat throughout the previous couple of, tough years. With my restricted bandwidth because of the ongoing spinal cerebrospinal (CSF) leak, I’ve needed to reduce out among the work I need to do. The weblog was placed on hiatus first, as a result of updating on social media (primarily Instagram) is faster and fewer labour intensive.
However whereas I’ve not been placing out new posts right here, I’ve spent many hours updating the backend of the web site, and dealing on quite a few different issues that I wished to share. I’ve additionally seen specialists and discovered extra about my physique, sufficient that that info sheds a really completely different mild on the a few years of continual ache I endured previous to my CSF leak.
It has taken time to course of the thread that now connects dots I by no means thought to attach, and I wished to maintain my group up to date.
A number of updates about how I’m feeling, these linked dots, and the place I’m residing.
Shifting to Gatineau, Quebec and Residing Semi-Independently
Since Might, I’ve been residing in Gatineau, throughout the river from Ottawa. My brother lives in Ottawa, and my plan is to finally transfer there as properly. For now, although, Gatineau has been a beautiful center floor. I acquired to spend a summer time wandering all the way down to the water, seeing my household, and studying easy methods to dwell principally alone, with a leak.
My brother and his accomplice come over as soon as every week to assist with issues I can’t do, like getting groceries for me, and doing my laundry and my vacuuming. I’m fortunate that I’ve them to choose up the slack that my leak steals away, and I’ll by no means complain about getting extra time with individuals I really like a lot.
At first, adjusting to the condominium felt actually deflating. There have been many issues that I couldn’t attain, or use. The mattress was too low and really painful to get out and in of. The freezer was a drawer below the fridge, so I couldn’t open it with out making my CSF leak worse. The dishes and pots had been too heavy for me to scrub myself, or use comfortably. The listing went on.
These are fixable issues, in fact. I acquired a mattress pad, a tiny freezer, and new light-weight dishes and a small pot to make use of, thanks in no small half to the Amazon present playing cards you bought me for my birthday.
However the preliminary weeks right here felt actually deflating. As people we’re so good at adjusting. Typically too good, and we neglect the place we actually are. The attitude I misplaced was that I’m truly extra disabled than I remembered, one thing that hit me laborious once I moved into this condominium.
Like the rest, adjusting to this new life has its ups and downs, and finally I acquired previous the frustration and began strategizing methods to repair the issues I used to be dealing with. I additionally acquired a kitchen rolling cart, numerous canvas storage bins since every thing has to take a seat on counters to be reachable for me, and some different issues that make the place extra snug.
I used to be by no means certain if I’d even have the ability to dwell independently once more. So whereas there’s a lot I want I may do, I’m very grateful that I’m able to have extra autonomy after years of being so depending on others for each little factor.
Connecting the dots
As I discussed, my spinal CSF leak remains to be lively. However my physique both appears to have produced extra CSF, giving me some further “uptime”, or it has gotten barely higher. Since my leak, I’ve had immune and different points which have cropped up or worsened. I used to be in a position, with the assistance of labs and specialists, to lastly join the dots. You may learn extra about that course of on my private website as follows:
Mast cells are “sentinels” of the immune system, a sort of white blood cell that helps management the immune processes within the physique. They’re referred to as resident immune cells as a result of they reside in tissues and never in our bloodstream. They usually reside in tissues all around the physique, from the connective tissue, to the endothelial cells, to the epithelial cells, and even within the mind.
A few of the initiatives I’ve been engaged on within the months since I final printed.
Sharing Assets about Ache on Patreon
I created the Patreon as a technique to settle for assist from this group, however it’s slowly morphing into a spot the place I additionally share assets for people who find themselves struggling for continual ache, or those that know somebody who’s in ache.
The unhappy actuality is that the majority of us are in a type of two classes.
Through the years, I’ve acquired many questions on how I’ve coped with my very own ache ranges. Now, I’m getting questions on how somebody can assist an individual in ache. So the Patreon’s AMAs are a spot the place I reply these questions, and add further assets.
The posts I’ve shared there additionally go into how I made the condominium I’m in accessible, and what adjustments to the setup allowed me to deal with residing alone with the disabilities I now have. Most not too long ago, as generally individuals really feel unhealthy about asking for assist or accepting assist, somebody requested me to speak about easy methods to speak to somebody in ache to assist them get assist if they’re cussed. (I’ll be answering this within the subsequent AMA).
From suggestions thus far, these have been actually helpful. I look ahead to sharing extra.
Additionally, I’m now a Patreon ambassador! I acquired an e-mail from them in the summertime, asking if I’d be thinking about making use of for an ambassadorship programme they had been constructing. I’m one in all a small group of creators (out of their 200,000 customers) who had been accepted.
It’s nonetheless fairly new, and so far it’s been pretty to fulfill some actually attention-grabbing, tremendous creative individuals. The ambassadorship is unpaid, however options workshop—I’ve attended just a few thus far—and rewarding breakout rooms with others within the programme to share methods and issues/successes. Different perks embody 1:1 product assist, social media options, enjoyable swag for my Patreon group, in addition to paid alternatives to take part in issues like product focus teams or inventive collaborations with their group.
I don’t know the way they discovered me, and it’s intimidating as a result of most of the different creators have upwards of 2000 Patrons, however I’m wanting ahead to taking part! Provided that it was all of you who requested me to begin a Patreon, I’ve this group to thank!
Should you’re thinking about becoming a member of the Patreon group, you are able to do so right here.
A One-Time Help Possibility
After I launched my Patreon, I acquired messages from readers who wished to contribute and/or assist me in my work by way of a one-time cost. I didn’t have that in place, however do now.
The Curious About Every little thing Publication
Regardless of all this pleasure of transferring to a brand new place, I’ve managed to maintain my e-newsletter operating. I’ve been taking part in round with format (and emojis, I can’t assist myself), and primarily spotlighting just a few essential reads every month, together with extra enjoyable photo-essays and quirky items I discover. I generally embody private updates, however the focus of the e-newsletter is on proficient and/or essential writing value studying.
Whereas it’s on Substack, and lots of writers have moved to a paid e-newsletter mannequin, I don’t plan to take action. The Patreon is the first assist system for my revenue, alongside celiac playing cards and the meals maps store. The e-newsletter I plan to maintain free.
Even when this website has been extra dormant than I would really like, I really feel completely happy that CAE has gone out each month for the final 11 months.
You may join beneath if you’re thinking about receiving it.
A Large Piece about Psychological Mindset (Coming Quickly)
I had a put up referred to as How one can Get By means of Horrible Instances that I had on this website, however I’ve briefly taken it down as I deliberate to publish it individually. I’ve been engaged on this piece over the past whereas and it’s nonetheless in modifying, however I’m excited to share it on the new JE website.
Redesign of Authorized Nomads:
You could have observed that the location is a little bit completely different!
Arthur the raven, my mascot, may be very outstanding. Ravens are such extremely curious birds, and I selected one as my website’s throughline with a purpose to spotlight that I nonetheless am too, albeit another way to earlier than.
And, a brand new slogan: interested by every thing. I’m not telling tales by way of meals, in order that slogan needed to go. The brand new brand displays a divergence from my prior lifetime of journey and meals, but in addition the reality of who I all the time was: somebody who wished to be taught as a lot as attainable.
I began to really feel actually dissonant once I regarded on the ‘previous’ Authorized Nomads, so this displays extra of the place I’m in life whereas nonetheless sustaining the same construction.
I’ve added well being and continual ache to the primary classes on the house web page, too, since they’re now a much bigger a part of what I write about.
I had actually particular concepts of what I wished, in order with the final redesign to the location I supplied the property (new logos, Arthur the Raven, and many others.) to an internet developer as a substitute of hiring somebody who did branding in addition to growth. The property had been inked by my artist-in-Authorized-Nomadsness Ella F. Sanders. The redesign was achieved by an internet developer who works for fellow journey blogger Mike’s net growth firm. Whereas her work was paid, he donated his personal time professional bono to assist supervise the undertaking.
Put up Overhauls and Web page Updates:
My morning routine is to rise up, make espresso, after which do some work on the web site till I must take a break.
This has allowed me to slowly replace pages and posts over time, and preserve Authorized Nomads extra present.
- The gluten free guides are up to date for 2021. They’re right here.
- The gluten free New York Metropolis information has additionally been up to date to mirror restaurant closures and a few newcomers to the scene which might be 100% gluten free.
- I added a historical past of Belize part, and a “the place is Belize situated” part, as a result of consider it or not that’s the commonest search time period for this put up. It’s additionally acquired COVID-19 guidelines for visiting, should you had been selecting to danger going now.
- I up to date the Vietnamese Egg Espresso Recipe with locations to get it in North America, and new items and movies concerning the candy deal with.
- I up to date my piece on sleep points and jet lag with details about easy methods to sleep higher, and new research about chronomedicine and Covid-19.
- I up to date my Vipassana Meditation retreat expertise with some new knowledge concerning the risks of these sorts of retreats, and the way in some instances they will result in a psychological break.
- The Different Careers for Attorneys web page has been up to date to incorporate pandemic info, the rise of consultants within the authorized area, and a extra clear breakdown of easy methods to go about shifting careers if you really feel overwhelmed eager about how to take action.
- In November 2021, I up to date my historical past of chili peppers put up to incorporate the 2021 Nobel Prize profitable analysis on capsaicin, somatosensory receptors, and ache.
RSS-to-E-mail Adjustments: Feedburner isn’t any extra. RIP Feedburner.
Google has been threatening to chop RSS-to-email choices for Feedburner for a few years. The service was deprecated years in the past, and this July they lastly mentioned that they had been achieved supporting that choice. So I had to determine what service to make use of with a purpose to get these individuals their emails. (Since I barely write right here, I had numerous time to do that!)
For these of you who opted to obtain Authorized Nomads updates by way of e-mail, new posts shall be despatched by an organization referred to as ConvertKit. I used to be planning on switching to them proper earlier than my CSF leak occurred, so it solely took me an additional few years. My pal Nathan began the corporate and is a extremely pretty human being; I’d a lot somewhat give my cash to proficient buddies than strangers!
Should you’re not getting Authorized Nomads by way of e-mail, you possibly can join by way of the shape beneath. That is only for LN posts (about each six months, when it comes to publishing schedule as of late!). My month-to-month e-newsletter above is separate.
Should you had been already subscribed to get Authorized Nomads posts by e-mail, you don’t want to do something. I wished to clarify why the emails look completely different, and let everybody know they will additionally join that manner if they like.
That’s it for now!
Whereas the ache I’m in by no means goes away, these initiatives and my newfound autonomy have helped make these previous few months among the finest in years. I will not be cellular or touring the world anymore, however I consider that I’m capable of assist extra individuals than ever earlier than.
Whether or not it’s serving to navigate robust instances, understanding ache and loss, or simply giving extra context to the sicknesses of family members, this work feels helpful.
And feeling helpful goes a good distance towards life satisfaction for me.
Thanks for permitting me to share this journey with you.
Till subsequent time,